Traumatismo crânio-encefálico e qualidade de vida: diferenças entre a perspetiva do doente e do cuidador

  • Ana Freitas Peixoto Magalhães (Student)
  • Silva Nunes, M. V. (Supervisor)
  • Sandra Guerreiro (Co-supervisor)

Activity: Supervision

Description

Introduction: Nowadays traumatic brain injury is characterized as one of the major global public health problems. Although the incidence of cases is decreasing, the numbers are still concerning, so are the disabilities that result from them (physical, cognitive and emotional). Generally the quality of life of these people is reduced, which makes the role of the caregiver a necessity. Knowing the importance that QOL assumes as an outcome, but also as a measure of neuropsychological rehabilitation it is important that it’s well-known by all the people involved. Here, the caregiver may have a favorable role regarding the knowledge and characterization of the patient. Aim: The objective of this investigation is to know a second opinion regarding the QOL of the person with TBI, specifically the caregiver, and realize how it can complement the first’s self-assessment. Method: The research involved the participation of two groups (Patients (n32) and Caregivers (n32)), we performed a quantitative assessment of the Patient's QOL, using the QOLIBRI. A statistical analysis was performed to compare the difference between the assessment of both groups. Additionally, the difference between the group’s perspectives was measured on the diverse domains of the QOLIBRI, and finally, the relationship between the caregiver burden and how they assesse the Patient's QOL was explored. Results: We found no significant differences between both group’s perspective, relatively to the QOL (general), however we could observe some variances in between the specific QOL domains assessed by the QOLIBRI. Discussion: Although no significant differences were registered in the assessment of the overall QOL, a more detailed analysis of it’s specific dimensions, point out some discrepancies.
Period3 Nov 2015
Held atUniversidade Católica Portuguesa
Degree of RecognitionMaster