A qualitative study of the spiritual aspects of parenting a child with Down syndrome

Elysangela Dittz Duarte, Patrícia P. Braga, Bárbara R. Guimarães, Juliana B. da Silva, Silvia Caldeira

Research output: Contribution to journalArticlepeer-review

Abstract

Parenting a child with Down syndrome can sometimes present certain difficulties and, thus, spirituality may function as a dimension related to finding meaning in life and as a coping resource. Spirituality is a critical dimension of nursing care, but scarce knowledge is available to specifically inform family nursing practice. The aim of this study was to explore the spiritual aspects of parenting a child with Down syndrome, as a qualitative secondary analysis. This is an observational qualitative study, based on in-depth interviews from 42 participants. Data analysis found seven categories that concern meaning and purpose in life: hope, family strength, spiritual practices, personal beliefs, and love, and trust in healthcare providers. Spirituality is a resource in parents' lives who are living in this situation. Nurses should consider this dimension in supporting families and in improving management of this life and health condition.
Original languageEnglish
Article number546
Pages (from-to)1-14
Number of pages14
JournalHealthcare
Volume10
Issue number3
DOIs
Publication statusPublished - Mar 2022

Keywords

  • Beliefs
  • Down syndrome
  • Family
  • Hope
  • Parenting
  • Spirituality

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