A qualitative study of the spiritual aspects of parenting a child with Down syndrome

Elysangela Dittz Duarte; Patrícia P. Braga; Bárbara R. Guimarães; Juliana B. da Silva; Silvia Caldeira

doi:10.3390/healthcare10030546

A qualitative study of the spiritual aspects of parenting a child with Down syndrome

Elysangela Dittz Duarte, Patrícia P. Braga, Bárbara R. Guimarães, Juliana B. da Silva, Silvia Caldeira

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Abstract

Parenting a child with Down syndrome can sometimes present certain difficulties and, thus, spirituality may function as a dimension related to finding meaning in life and as a coping resource. Spirituality is a critical dimension of nursing care, but scarce knowledge is available to specifically inform family nursing practice. The aim of this study was to explore the spiritual aspects of parenting a child with Down syndrome, as a qualitative secondary analysis. This is an observational qualitative study, based on in-depth interviews from 42 participants. Data analysis found seven categories that concern meaning and purpose in life: hope, family strength, spiritual practices, personal beliefs, and love, and trust in healthcare providers. Spirituality is a resource in parents' lives who are living in this situation. Nurses should consider this dimension in supporting families and in improving management of this life and health condition.

Original language	English
Article number	546
Pages (from-to)	1-14
Number of pages	14
Journal	Healthcare
Volume	10
Issue number	3
DOIs	https://doi.org/10.3390/healthcare10030546
Publication status	Published - Mar 2022

Keywords

Beliefs
Down syndrome
Family
Hope
Parenting
Spirituality

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10.3390/healthcare10030546Licence: CC BY

42907834Final published version, 600 KBLicence: CC BY

http://hdl.handle.net/10400.14/37326Licence: CC BY

Cite this

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A qualitative study of the spiritual aspects of parenting a child with Down syndrome

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A qualitative study of the spiritual aspects of parenting a child with Down syndrome

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