Lived experience of comfort on sexuality and fertility for survivors of hematopoietic stem cell transplants: phenomenological study

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Abstract

Purpose: To grasp the scope of sexuality and fertility within the lived experiences of comfort and discomfort among allogeneic stem cell transplant survivors.Methods: We employed a qualitative approach through van Manen's phenomenology of practice. The phenomenon was revealed via phenomenological interviews, incorporating narratives and illustrative episodes that captured the lived experiences of 20 survivors. We gathered descriptions of these experiences from participants from July 2020 to May 2021. During our phenomenological reflection on these accounts, we adhered to stages like epoché, reduction, and vocative, as outlined by van Manen (1).Results: The exploration of comfort within the realms of sexuality and fertility yielded several themes: desire and the relationship; immunosuppression as a limitation on sexual activit; the body does not correspond to desire; the future: fertility and the couple's relationship; the challenges of disclosure and intervention.Conclusion: The findings indicate that survivors have long-term challenges with sexual expression and activity, stemming from the physical constraints of GVHD, perceptions of their immunosuppression, and the significance of their partnership, all of which translate into requirements for nursing care.
Original languageEnglish
JournalJournal of Cancer Survivorship
Publication statusAccepted/In press - Jun 2024

Keywords

  • Comfort
  • Survivor
  • Sexuality
  • Fertility
  • Stem cells transplant
  • Lived experience
  • Nursing
  • Phenomenology

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