TY - JOUR
T1 - Measuring spiritual well-being in Brazilian adolescents with chronic illness using the FACIT-Sp-12
T2 - age adaptation of the self-report version, development of the parental-report version, and validation
AU - Alvarenga, Willyane Andrade de
AU - Nascimento, Lucila Castanheira
AU - Santos, Claudia Benedita dos
AU - Leite, Ana Carolina Andrade Biaggi
AU - Mühlan, Holger
AU - Schmidt, Silke
AU - Bullinger, Monika
AU - Carvalho, Emília Campos de
AU - Bredle, Jason
AU - Arnold, Benjamin
AU - Coelho, Robson de Castro
AU - Vieira, Margarida
PY - 2019/12/1
Y1 - 2019/12/1
N2 - Spiritual well-being is a major issue in health care, but instruments for measuring this construct in adolescents are lacking. This study adapted the 12-item Functional Assessment of Chronic Illness Therapy-Spiritual Well-being Scale (FACIT-Sp-12) for use with Brazilian adolescents with chronic diseases and developed a parental observer-rated version, using an expert panel, back-translation, and cognitive interviews with 72 participants. The psychometric properties of both versions were verified with two- and three-factor models by testing with 212 participants. The self- and parental-reported versions showed face validity, content validity, and acceptable levels of internal consistency for the overall scale and the two-factor model. The convergent validity was satisfactory for most items in both two- and three-factor models, but there was a lack of discrimination in the three-factor model using multitrait–multimethod analysis. This study presents the first instrument to assess the spiritual well-being of adolescents from their point of view and to allow their parents to serve as evaluators. However, we recommend further psychometric testing of the self- and parental-report scales to assess spiritual well-being in adolescents with chronic diseases in Brazil.
AB - Spiritual well-being is a major issue in health care, but instruments for measuring this construct in adolescents are lacking. This study adapted the 12-item Functional Assessment of Chronic Illness Therapy-Spiritual Well-being Scale (FACIT-Sp-12) for use with Brazilian adolescents with chronic diseases and developed a parental observer-rated version, using an expert panel, back-translation, and cognitive interviews with 72 participants. The psychometric properties of both versions were verified with two- and three-factor models by testing with 212 participants. The self- and parental-reported versions showed face validity, content validity, and acceptable levels of internal consistency for the overall scale and the two-factor model. The convergent validity was satisfactory for most items in both two- and three-factor models, but there was a lack of discrimination in the three-factor model using multitrait–multimethod analysis. This study presents the first instrument to assess the spiritual well-being of adolescents from their point of view and to allow their parents to serve as evaluators. However, we recommend further psychometric testing of the self- and parental-report scales to assess spiritual well-being in adolescents with chronic diseases in Brazil.
KW - Adolescents
KW - Parents
KW - Proxy
KW - Psychometrics
KW - Spiritual well-being
KW - Spirituality
KW - Validation studies
UR - http://www.scopus.com/inward/record.url?scp=85071452537&partnerID=8YFLogxK
U2 - 10.1007/s10943-019-00901-y
DO - 10.1007/s10943-019-00901-y
M3 - Article
C2 - 31446605
AN - SCOPUS:85071452537
SN - 0022-4197
VL - 58
SP - 2219
EP - 2240
JO - Journal of Religion and Health
JF - Journal of Religion and Health
IS - 6
ER -