Nursing education on palliative care across Europe: results and recommendations from the EAPC Taskforce on preparation for practice in palliative care nursing across the EU based on an online-survey and country reports

Sandra Martins  Pereira; Pablo Hernández-Marrero; H. Roeline Pasman; Manuel Luís Capelas; Philip Larkin; Anneke L. Francke

doi:10.1177/0269216320956817

Nursing education on palliative care across Europe: results and recommendations from the EAPC Taskforce on preparation for practice in palliative care nursing across the EU based on an online-survey and country reports

Sandra Martins Pereira^*, Pablo Hernández-Marrero, H. Roeline Pasman, Manuel Luís Capelas, Philip Larkin, Anneke L. Francke

^*Corresponding author for this work

Research output: Contribution to journal › Article › peer-review

39 Citations (Scopus)

Abstract

Background: Nurses are the largest regulated group of healthcare professionals involved in palliative care. In 2004, a taskforce of the European Association for Palliative Care (EAPC) launched the ‘Guide for development of palliative nurse education in Europe’ (hereinafter, the EAPC 2004 Guide). No systematic evaluation of its impact in the development of palliative care education was undertaken. Aims: To describe current undergraduate and postgraduate nursing education across Europe; to identify the roles that nurses with different palliative care educational levels have in palliative care; and to assess the uptake of the EAPC 2004 Guide in the development of palliative care nursing in Europe. Design: Descriptive research involving an online survey among nursing experts, and the consultation of national representatives. Setting/participants: A total of 135 nurses (52% response rate) from 25 countries completed the online survey; representatives from 16 countries were consulted. Results: In 14 (56%) countries, palliative care was not identified as a mandatory subject within undergraduate nursing education. The EAPC 2004 Guide is widely known and was/is being used in many countries to promote palliative care nursing education. Large variations were found across and within country responses. Conclusions: Palliative care nursing education varies largely in Europe. The wide awareness and use of the EAPC 2004 Guide show how policy measures can influence the development of palliative care education. Recommendations are built and focus on both fostering the use of this guide and implementing policy measures to ensure that palliative care nursing is recognised and certified as a specialty in all European countries.

Original language	English
Pages (from-to)	130-141
Number of pages	12
Journal	Palliative Medicine
Volume	35
Issue number	1
DOIs	https://doi.org/10.1177/0269216320956817
Publication status	Published - Jan 2021

Keywords

Competencies
Curriculum
End of life care
Guidelines
Hospice and palliative care nursing
Nursing education
Online survey
Palliative care
Professional competence
Professional education

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CIIS: Center for Interdisciplinary Research in Health
Barros, M. (PI), Rosa, N. (Researcher), Correia, M. J. (Researcher), Caldas, A. C. (Researcher), Amado, J. C. (Researcher), Figueiredo, A. S. (Researcher), Esteves, A. C. (Researcher), Mineiro, A. (Researcher), Abreu, A. M. (Researcher), Duarte, A. S. (Researcher), Almeida, S. F. (Researcher), Correia, A. (Researcher), Moura, A. (Researcher), Almeida, A. (Researcher), Araújo, B. (Researcher), Moura-Netto, C. (Researcher), Ferrito, C. (Researcher), Pais-Vieira, C. (Researcher), Festas, C. (Researcher), Marques-Vieira, C. (Researcher), Catré, D. (Researcher), Nunes, E. (Researcher), Jesus, É. (Researcher), Ribeiro, F. (Researcher), Rosário, F. (Researcher), Fernandes, G. (Researcher), Rato, J. R. (Scholarship holder), Salgado, J. R. (Researcher), Neves-Amado, J. (Researcher), Amendoeira, J. (Researcher), Sá, L. (Researcher), Capelas, M. L. (Researcher), Vieira, M. M. (Researcher), Nunes, M. V. S. (Researcher), Cardoso, M. (Researcher), Veiga, N. J. (Researcher), Fonseca, P. (Researcher), Correia, P. N. (Researcher), Couto, P. (Researcher), Pontífice-Sousa, P. (Researcher), Ravasco, P. (Researcher), Carvalho, P. V. D. (Researcher), Alves, P. (Researcher), Melo, P. (Researcher), Silva, R. (Researcher), Canaipa, R. (Researcher), Noites, R. (Researcher), Rio, R. (Researcher), Almeida, S. (Researcher), Deodato, S. (Researcher), Caldeira, S. (Researcher), Silva, S. (Researcher), Borges, T. (Researcher), Silva, V. (Researcher), Charepe, Z. (Researcher), Rodrigues-Pires, F. (Volunteer), Veludo, F. (Researcher), Carmo, H. (Scholarship holder), Romeiro, J. (Student), Melo, M. (Researcher), Braga, M. (Researcher), Amaral, T. (Researcher), Moreira, M. A. (Researcher), Guerra, N. (Student), Santos, P. (Researcher), Paço, S. (Student), Lynce, S. (Scholarship holder), Miguel, S. (Student), Costa, T. (Researcher), Silva-Neves, V. (Researcher), Silva, A. (Researcher), Carvalho, A. R. (Researcher), Almeida, B. (Researcher), Figueiredo, C. (Researcher), Esteves, E. (Scholarship holder), Araújo, F. M. (Researcher), Garcia, J. G. (Researcher), Santos, L. (Researcher), Santos, N. M. D. (Researcher), Lopes, P. (Researcher), Bornes, R. (Researcher), Silva, R. (Researcher), Costa, S. (Researcher), Silva, S. M. (Researcher), Marques, T. (Researcher), Almeida, A. (Researcher), Santos, M. (Scholarship holder), Santos, P. (Researcher), Miguel, S. (Researcher), Mendes, K. (Researcher), Gomes, A. P. (Researcher), Henriques, J. M. P. (Researcher), Costa, H. A. F. P. (Researcher) & Ribeiro, P. (Researcher)
Fundação para a Ciência e a Tecnologia
1/01/20 → 31/12/24
Project: Research
CEGE: Research Center in Management and Economics
Silva, M. (Full Professor), Sousa, R. (Full Professor), Alves, P. (Assistant Professor), Madsen, A. (Invited Assistant Professor), Lourenço, A. (Associate Professor), Carvalho, A. S. (Associate Professor), Andrade, A. (Assistant Professor), Silva, P. D. (Associate Professor), Vlačić, B. (Invited Assistant Professor), Martins, C. (Invited Assistant Professor), Gomes, C. (Auxiliary Researcher), Gevrek, Z. E. (Invited Assistant Professor), Oliveira, F. G. D. (Associate Professor), Faria, G. (Invited Associate Professor), Marreiros, H. (Scholarship holder), Pinho, J. (Invited Assistant Professor), Machado, J. (Associate Professor), Araújo, J. (Auxiliary Researcher), Pinto, J. (Assistant Professor), Rego, A. (Full Professor), Gaspar, J. M. (Auxiliary Researcher), Corbo, L. (Invited Assistant Professor), Costa, L. (Associate Professor), Fernandes, L. (Assistant Professor), Sottomayor, M. (Assistant Professor), Martins, N. (Full Professor), Hernández-Marrero, P. (Auxiliary Researcher), Gonçalves, R. (Associate Professor), Ribeiro, R. (PI), Coelho, S. L. (Assistant Teacher), Pereira, S. M. (Auxiliary Researcher), Silva, S. (Associate Professor), Rodrigues, V. (Associate Professor), Sotiros, D. G. (Auxiliary Researcher), Valverde, C. (Assistant Professor), Leitão, A. (Assistant Professor), Julião, J. (Assistant Professor), Tavares, M. (Assistant Professor), Lages, C. R. (Auxiliary Researcher), Elmashhara, M. G. (Auxiliary Researcher) & Teymourifar, A. (Auxiliary Researcher)
1/01/20 → 31/12/24
Project: Research
PAL-RES: Integrated care: Transferring, integrating, and evaluating complex and comprehensive palliative care interventions, organizational models, knowledge, philosophy, experiences, and practices across healthcare provision through (bio)ethics empirical research
Pereira, S. M. (PI)
15/04/19 → 14/04/25
Project: Research

Cite this

Pereira, S. M., Hernández-Marrero, P., Pasman, H. R., Capelas, M. L., Larkin, P., & Francke, A. L. (2021). Nursing education on palliative care across Europe: results and recommendations from the EAPC Taskforce on preparation for practice in palliative care nursing across the EU based on an online-survey and country reports. Palliative Medicine, 35(1), 130-141. https://doi.org/10.1177/0269216320956817

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title = "Nursing education on palliative care across Europe: results and recommendations from the EAPC Taskforce on preparation for practice in palliative care nursing across the EU based on an online-survey and country reports",

abstract = "Background: Nurses are the largest regulated group of healthcare professionals involved in palliative care. In 2004, a taskforce of the European Association for Palliative Care (EAPC) launched the {\textquoteleft}Guide for development of palliative nurse education in Europe{\textquoteright} (hereinafter, the EAPC 2004 Guide). No systematic evaluation of its impact in the development of palliative care education was undertaken. Aims: To describe current undergraduate and postgraduate nursing education across Europe; to identify the roles that nurses with different palliative care educational levels have in palliative care; and to assess the uptake of the EAPC 2004 Guide in the development of palliative care nursing in Europe. Design: Descriptive research involving an online survey among nursing experts, and the consultation of national representatives. Setting/participants: A total of 135 nurses (52% response rate) from 25 countries completed the online survey; representatives from 16 countries were consulted. Results: In 14 (56%) countries, palliative care was not identified as a mandatory subject within undergraduate nursing education. The EAPC 2004 Guide is widely known and was/is being used in many countries to promote palliative care nursing education. Large variations were found across and within country responses. Conclusions: Palliative care nursing education varies largely in Europe. The wide awareness and use of the EAPC 2004 Guide show how policy measures can influence the development of palliative care education. Recommendations are built and focus on both fostering the use of this guide and implementing policy measures to ensure that palliative care nursing is recognised and certified as a specialty in all European countries.",

keywords = "Competencies, Curriculum, End of life care, Guidelines, Hospice and palliative care nursing, Nursing education, Online survey, Palliative care, Professional competence, Professional education",

author = "Pereira, {Sandra Martins} and Pablo Hern{\'a}ndez-Marrero and Pasman, {H. Roeline} and Capelas, {Manuel Lu{\'i}s} and Philip Larkin and Francke, {Anneke L.}",

note = "Funding Information: We would like to thank all the respondents of the online survey and validation-update round. We would also like to thank all the members of the Steering Committee, Advisory Committee and Collaborators of the EAPC Taskforce on Preparation for practice in Palliative Care Nursing across the EU for their valuable contributions. We also express our gratitude to Dr. Julie Ling (CEO) and the staff of the EAPC Head Office for their support throughout the duration of the taskforce. The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: The EAPC Taskforce on Preparation for practice in Palliative Care Nursing across the EU did not receive any funding. Sandra Martins Pereira is Principal Investigator funded by the Portuguese Foundation for Science and Technology (FCT) under the Scientific Employment Stimulus. Pablo Hern{\'a}ndez-Marrero is funded by Project EnSupCare (Institute of Bioethics) and CEGE (funded by FCT through UIDB/00731/2020) Funding Information: The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: The EAPC Taskforce on Preparation for practice in Palliative Care Nursing across the EU did not receive any funding. Sandra Martins Pereira is Principal Investigator funded by the Portuguese Foundation for Science and Technology (FCT) under the Scientific Employment Stimulus. Pablo Hern{\'a}ndez-Marrero is funded by Project EnSupCare (Institute of Bioethics) and CEGE (funded by FCT through UIDB/00731/2020) Publisher Copyright: {\textcopyright} The Author(s) 2020.",

year = "2021",

month = jan,

doi = "10.1177/0269216320956817",

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Pereira, SM , Hernández-Marrero, P, Pasman, HR, Capelas, ML, Larkin, P & Francke, AL 2021, 'Nursing education on palliative care across Europe: results and recommendations from the EAPC Taskforce on preparation for practice in palliative care nursing across the EU based on an online-survey and country reports', Palliative Medicine, vol. 35, no. 1, pp. 130-141. https://doi.org/10.1177/0269216320956817

Nursing education on palliative care across Europe: results and recommendations from the EAPC Taskforce on preparation for practice in palliative care nursing across the EU based on an online-survey and country reports. / Pereira, Sandra Martins ; Hernández-Marrero, Pablo; Pasman, H. Roeline et al.
In: Palliative Medicine, Vol. 35, No. 1, 01.2021, p. 130-141.

Research output: Contribution to journal › Article › peer-review

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T1 - Nursing education on palliative care across Europe

T2 - results and recommendations from the EAPC Taskforce on preparation for practice in palliative care nursing across the EU based on an online-survey and country reports

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AU - Pasman, H. Roeline

AU - Capelas, Manuel Luís

AU - Larkin, Philip

AU - Francke, Anneke L.

N1 - Funding Information: We would like to thank all the respondents of the online survey and validation-update round. We would also like to thank all the members of the Steering Committee, Advisory Committee and Collaborators of the EAPC Taskforce on Preparation for practice in Palliative Care Nursing across the EU for their valuable contributions. We also express our gratitude to Dr. Julie Ling (CEO) and the staff of the EAPC Head Office for their support throughout the duration of the taskforce. The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: The EAPC Taskforce on Preparation for practice in Palliative Care Nursing across the EU did not receive any funding. Sandra Martins Pereira is Principal Investigator funded by the Portuguese Foundation for Science and Technology (FCT) under the Scientific Employment Stimulus. Pablo Hernández-Marrero is funded by Project EnSupCare (Institute of Bioethics) and CEGE (funded by FCT through UIDB/00731/2020) Funding Information: The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: The EAPC Taskforce on Preparation for practice in Palliative Care Nursing across the EU did not receive any funding. Sandra Martins Pereira is Principal Investigator funded by the Portuguese Foundation for Science and Technology (FCT) under the Scientific Employment Stimulus. Pablo Hernández-Marrero is funded by Project EnSupCare (Institute of Bioethics) and CEGE (funded by FCT through UIDB/00731/2020) Publisher Copyright: © The Author(s) 2020.

PY - 2021/1

Y1 - 2021/1

N2 - Background: Nurses are the largest regulated group of healthcare professionals involved in palliative care. In 2004, a taskforce of the European Association for Palliative Care (EAPC) launched the ‘Guide for development of palliative nurse education in Europe’ (hereinafter, the EAPC 2004 Guide). No systematic evaluation of its impact in the development of palliative care education was undertaken. Aims: To describe current undergraduate and postgraduate nursing education across Europe; to identify the roles that nurses with different palliative care educational levels have in palliative care; and to assess the uptake of the EAPC 2004 Guide in the development of palliative care nursing in Europe. Design: Descriptive research involving an online survey among nursing experts, and the consultation of national representatives. Setting/participants: A total of 135 nurses (52% response rate) from 25 countries completed the online survey; representatives from 16 countries were consulted. Results: In 14 (56%) countries, palliative care was not identified as a mandatory subject within undergraduate nursing education. The EAPC 2004 Guide is widely known and was/is being used in many countries to promote palliative care nursing education. Large variations were found across and within country responses. Conclusions: Palliative care nursing education varies largely in Europe. The wide awareness and use of the EAPC 2004 Guide show how policy measures can influence the development of palliative care education. Recommendations are built and focus on both fostering the use of this guide and implementing policy measures to ensure that palliative care nursing is recognised and certified as a specialty in all European countries.

AB - Background: Nurses are the largest regulated group of healthcare professionals involved in palliative care. In 2004, a taskforce of the European Association for Palliative Care (EAPC) launched the ‘Guide for development of palliative nurse education in Europe’ (hereinafter, the EAPC 2004 Guide). No systematic evaluation of its impact in the development of palliative care education was undertaken. Aims: To describe current undergraduate and postgraduate nursing education across Europe; to identify the roles that nurses with different palliative care educational levels have in palliative care; and to assess the uptake of the EAPC 2004 Guide in the development of palliative care nursing in Europe. Design: Descriptive research involving an online survey among nursing experts, and the consultation of national representatives. Setting/participants: A total of 135 nurses (52% response rate) from 25 countries completed the online survey; representatives from 16 countries were consulted. Results: In 14 (56%) countries, palliative care was not identified as a mandatory subject within undergraduate nursing education. The EAPC 2004 Guide is widely known and was/is being used in many countries to promote palliative care nursing education. Large variations were found across and within country responses. Conclusions: Palliative care nursing education varies largely in Europe. The wide awareness and use of the EAPC 2004 Guide show how policy measures can influence the development of palliative care education. Recommendations are built and focus on both fostering the use of this guide and implementing policy measures to ensure that palliative care nursing is recognised and certified as a specialty in all European countries.

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KW - Guidelines

KW - Hospice and palliative care nursing

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Pereira SM , Hernández-Marrero P, Pasman HR, Capelas ML, Larkin P, Francke AL. Nursing education on palliative care across Europe: results and recommendations from the EAPC Taskforce on preparation for practice in palliative care nursing across the EU based on an online-survey and country reports. Palliative Medicine. 2021 Jan;35(1):130-141. doi: 10.1177/0269216320956817

Nursing education on palliative care across Europe: results and recommendations from the EAPC Taskforce on preparation for practice in palliative care nursing across the EU based on an online-survey and country reports

Abstract

Keywords

Access to Document

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Projects

CIIS: Center for Interdisciplinary Research in Health

CEGE: Research Center in Management and Economics

PAL-RES: Integrated care: Transferring, integrating, and evaluating complex and comprehensive palliative care interventions, organizational models, knowledge, philosophy, experiences, and practices across healthcare provision through (bio)ethics empirical research

Cite this