Promover a esperança perante um diagnóstico de cardiopatia congénita: reflexão sobre as vivências dos pais

Translated title of the contribution: Promoting hope in the face of a diagnosis of congenital heart disease: reflection on parents’ experiences

Matilde Silva Carvalho, Telma Duarte, Zaida Charepe

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Abstract

Introduction: The experience of parents of children with congenital heart disease is characterized by numerous critical periods, described by parents as an emotional roller coaster and focused on the uncertainty of the possibility of death and the child’s survival. Aim: To reflect on the experiences of hope of parents of children with complex congenital heart disease, in an intensive care unit. Methods: Using the Gibbs Reflective Cycle framework, an episode of practice was explored. Results: Parental experiences are characterized by feelings of fear, despair and suffering, in a permanent uncertainty regarding the future. Hope plays a central role in the parents’ daily experiences. It is essential to intervene promoting a realistic hope, emphasizing the experience of parenthood, family and social support, faith, and celebrating children’s achievements and parental skills. Conclusions: Reflecting on practice, we explored parenting experiences and the positive effect of promoting realistic hope. Recognizing the therapeutic effect of hope in the care process, nurses should adjust the care plan to include hope promoting interventions. 
Translated title of the contributionPromoting hope in the face of a diagnosis of congenital heart disease: reflection on parents’ experiences
Original languagePortuguese
Pages (from-to)51-57
Number of pages7
JournalCadernos de Saúde
Volume14
Issue number1
DOIs
Publication statusPublished - 3 Jan 2022

Keywords

  • Hope
  • Pediatric nursing
  • Parents
  • Heart defects
  • Congenital
  • Nursing

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