Risk perception in subjects at-risk for Familial Amyloidotic Polyneuropathy

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Abstract

The aims of this study are to know if subjects at-risk were aware of their 50% risk for Familial Amyloidotic Polyneuropathy (FAP); to know the value of the subjective risk; to understand the association between sociodemographic characteristics and risk perception, and between the risk status and the subjective perception of risk. 174 subjects 50% atrisk for FAP were tested. 52.9% subjects at-risk were aware of their 50% risk condition. The mean value of the subjective risk was higher and closer to 50% when the subjects were aware of their 50% risk condition. Education was associated to a higher awareness of being at 50% risk. It seems that information on previous knowledge before performing the genetic counselling increases the subjective risk.

Original languageEnglish
Article number15
JournalUniversitas Psychologica
Volume16
Issue number3
DOIs
Publication statusPublished - 2017
Externally publishedYes

Keywords

  • Familial amyloidotic polyneuropathy (FAP)
  • Objective risk
  • Psychological risk
  • Risk perception
  • Subjective risk

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