Abstract
The aims of this study are to know if subjects at-risk were aware of their 50% risk for Familial Amyloidotic Polyneuropathy (FAP); to know the value of the subjective risk; to understand the association between sociodemographic characteristics and risk perception, and between the risk status and the subjective perception of risk. 174 subjects 50% atrisk for FAP were tested. 52.9% subjects at-risk were aware of their 50% risk condition. The mean value of the subjective risk was higher and closer to 50% when the subjects were aware of their 50% risk condition. Education was associated to a higher awareness of being at 50% risk. It seems that information on previous knowledge before performing the genetic counselling increases the subjective risk.
Original language | English |
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Article number | 15 |
Journal | Universitas Psychologica |
Volume | 16 |
Issue number | 3 |
DOIs | |
Publication status | Published - 2017 |
Externally published | Yes |
Keywords
- Familial amyloidotic polyneuropathy (FAP)
- Objective risk
- Psychological risk
- Risk perception
- Subjective risk