Abstract
OBJECTIVE: To understand how the care partnership was experienced by parents of children with special healthcare needs. METHOD: Qualitative, descriptive and exploratory study, carried out from December 2013 to February 2014. The method used was the narrative. The population corresponded to parents of children admitted to a medical service of a Pediatric Hospital in Portugal. The sample consisted of 10 parents. The data collection included the sociodemographic characterization and the etnobiografic orientation interview. Once transcribed, the interviews yielded 10 narratives of partnership experiences between the parents and the nursing team. RESULTS: It was noted, as partnership opportunities, the training of parents and the collaborative decision-making, established in a dynamic, unique and ongoing relational process. CONCLUSION: The opportunities for partnership are key assumptions for the care delivery focusing on the child and on the parents as their resources.
| Translated title of the contribution | A parceria de cuidados pelo olhar dos pais de crianças com necessidades especiais de saúde |
|---|---|
| Original language | English |
| Pages (from-to) | e2016-e2070 |
| Journal | Revista Gaúcha Enfermagem |
| Volume | 38 |
| Issue number | 4 |
| DOIs | |
| Publication status | Published - 1 Jan 2017 |
Keywords
- Child
- Nursing
- Chronic disease
- Parents
- Caregivers
