TY - JOUR
T1 - What makes institutional long-term care the most appropriate setting for people with dementia? Exploring the influence of client characteristics, decision-maker attributes, and country in 8 European Nations
AU - Tucker, Sue
AU - Brand, Christian
AU - Sutcliffe, Caroline
AU - Challis, David
AU - Saks, Kai
AU - Verbeek, Hilde
AU - Cabrera, Esther
AU - Karlsson, Staffan
AU - Leino-Kilpi, Helena
AU - Stephan, Astrid
AU - Soto, Maria
AU - Meyer, Gabriele
AU - Renom-Guiteras, Anna
AU - Sauerland, Dirk
AU - Wübker, Ansgar
AU - Bremer, Patrick
AU - Hamers, Jan P. H.
AU - Afram, Basema
AU - Beerens, Hanneke C.
AU - Bleijlevens, Michel H. C.
AU - Zwakhalen, Sandra M.G.
AU - Ruwaard, Dirk
AU - Ambergen, Ton
AU - Hallberg, Ingalill Rahm
AU - Emilsson, Ulla Melin
AU - Bokberg, Christina
AU - Lethin, Connie
AU - Jolley, David
AU - Bowns, Ian
AU - Roe, Brenda
AU - Burns, Alistair
AU - Koskenniemi, Jaana
AU - Suhonen, Riitta
AU - Viitanen, Matti
AU - Arve, Seija
AU - Stolt, Minna
AU - Hupli, Maija
AU - Tiit, Ene Margit
AU - Leibur, Jelena
AU - Raamat, Katrin
AU - Armolik, Angelika
AU - Zabalegui, Adelaida
AU - Risco, Ester
AU - Alvira, Carme
AU - Farre, Marta
AU - Miguel, Susana
AU - Soto, Maria
AU - Milhet, Agathe
AU - Sourdet, Sandrine
AU - Gillette, Sophie
AU - Vellas, Bruno
AU - RightTimePlaceCare Consortium, Consortium
N1 - Publisher Copyright:
© 2016 AMDA - The Society for Post-Acute and Long-Term Care Medicine.
Copyright:
Copyright 2018 Elsevier B.V., All rights reserved.
PY - 2016/5/1
Y1 - 2016/5/1
N2 - Objectives: To explore the extent to which client characteristics, decision-maker attributes, and country influence judgments of institutional long-term care (ILTC) appropriateness for people with dementia. Design, setting, and participants: A total of 161 experts in dementia care from 8 European countries reviewed a series of 14 vignettes representing people with dementia on the cusp of ILTC admission and indicated the most appropriate setting in which to support each case in a simple discrete choice exercise: own home, very sheltered housing, residential home, or nursing home. At least 16 experts participated in each country (Estonia, Finland, France, Germany, the Netherlands, Spain, Sweden, and the United Kingdom). Measurements: Descriptive statistics were used to characterize the experts and their placement preferences. Logistic regression modeling was used to explore the extent to which the sociodemographic and clinical characteristics of people with dementia, and the profession, workplace, and country of decision-makers were associated with ILTC recommendation. Results: Client characteristics, decision-maker attributes, and country all seemed to play a part in influencing professionals' perceptions of the appropriateness of ILTC for people with dementia. Expert decision-makers were more likely to recommend ILTC for individuals who required help with mobility or had multiple care needs, and appeared to give more weight to carers' than clients' wishes. Community-based social workers were less likely than other professional groups to favor ILTC placement. Experts in Finland, Germany, and the United Kingdom were less likely to recommend ILTC than experts in France, the Netherlands, and Estonia; experts in Sweden and Spain took an intermediate position. Conclusion: This study provides new understanding of the factors that shape professionals' perceptions of ILTC appropriateness and highlights the need to construct multifaceted models of institutionalization when planning services for people with dementia. It also has several important clinical implications (including flagging interventions that could decrease the need for ILTC), and provides a basis for enhancing professionals' decision-making capabilities (including the greater involvement of clients themselves).
AB - Objectives: To explore the extent to which client characteristics, decision-maker attributes, and country influence judgments of institutional long-term care (ILTC) appropriateness for people with dementia. Design, setting, and participants: A total of 161 experts in dementia care from 8 European countries reviewed a series of 14 vignettes representing people with dementia on the cusp of ILTC admission and indicated the most appropriate setting in which to support each case in a simple discrete choice exercise: own home, very sheltered housing, residential home, or nursing home. At least 16 experts participated in each country (Estonia, Finland, France, Germany, the Netherlands, Spain, Sweden, and the United Kingdom). Measurements: Descriptive statistics were used to characterize the experts and their placement preferences. Logistic regression modeling was used to explore the extent to which the sociodemographic and clinical characteristics of people with dementia, and the profession, workplace, and country of decision-makers were associated with ILTC recommendation. Results: Client characteristics, decision-maker attributes, and country all seemed to play a part in influencing professionals' perceptions of the appropriateness of ILTC for people with dementia. Expert decision-makers were more likely to recommend ILTC for individuals who required help with mobility or had multiple care needs, and appeared to give more weight to carers' than clients' wishes. Community-based social workers were less likely than other professional groups to favor ILTC placement. Experts in Finland, Germany, and the United Kingdom were less likely to recommend ILTC than experts in France, the Netherlands, and Estonia; experts in Sweden and Spain took an intermediate position. Conclusion: This study provides new understanding of the factors that shape professionals' perceptions of ILTC appropriateness and highlights the need to construct multifaceted models of institutionalization when planning services for people with dementia. It also has several important clinical implications (including flagging interventions that could decrease the need for ILTC), and provides a basis for enhancing professionals' decision-making capabilities (including the greater involvement of clients themselves).
KW - Care home placement
KW - Decision-making
KW - Dementia
KW - Institutionalization
KW - Long-term care
UR - http://www.scopus.com/inward/record.url?scp=84963861104&partnerID=8YFLogxK
U2 - 10.1016/j.jamda.2016.02.025
DO - 10.1016/j.jamda.2016.02.025
M3 - Article
C2 - 27107162
AN - SCOPUS:84963861104
VL - 17
SP - 465.e9-465.e15
JO - Journal of the American Medical Directors Association
JF - Journal of the American Medical Directors Association
SN - 1525-8610
IS - 5
ER -