A experiência vivida de conforto dos sobreviventes a transplante alogénico de progenitores da hematopoiese

: um estudo fenomenológico

Abstract

Allogeneic Stem Cells Transplantation (ASCT), and consequently, the chronicity associated with this life event, has a growing prevalence and a significant impact on the life and daily life of each person who experiences it. The increase in the number of survivors of the transplantation process leads us to reflect on the phenomenon of comfort as desirable to the life experience of these people in this event. Recognizing this, we outlined the following question: What is the lived experience of comfort of the person survivor to allogeneic stem cells transplantation? To understand the lived experience of comfort, we used a qualitative approach using van Manen's phenomenology of practice (2014). We uncovered the phenomenon through phenomenological interviews, narratives, and illustrative episodes that reflected the lived experience of twenty survivors. In the process of analysis, we followed the "stages" such as epoché, reduction, and vocative, which happen simultaneously without being distinguished from each other (van Manen, 2017). The MAXQDA support facilitated organizing the data and in the analysis process. The results revealed the complexity of the phenomenon in relation to understanding how the survivor experiences comfort in the daily life of the TACPH process. In a logic of complementarity, the lived experience of comfort emerges from the articulation of the themes comfort intertwined with discomfort, the conditions determining the experience of comfort and the experience of caring: intertwined joint action. We found comfort as something desired, ambitioned to promote well-being and a sense of happiness for survivors. Discomfort cohabits comfort, influencing it in several significant facilitating or inhibiting determinants of living. In what is lived, the comforting intervention of health care professionals, more specifically nurses, and significant others is valued, thus constituting a comforting element adjusted to the survivor's care needs. About the comforting sphere, this knowledge allows personalizing and adapting the survivor's daily nursing care and may be an important contribution to the development of the dimension of the practice of Nursing care in relation to the understanding of the phenomenon of comfort towards improving the quality of care.

Date of Award	12 Oct 2023
Original language	Portuguese
Awarding Institution	Universidade Católica Portuguesa
Supervisor	Patrícia Pontífice-Sousa (Supervisor)