A participação dos avós nos cuidados à criança/jovem com necessidade de cuidados paliativos

Abstract

The Pediatric Nurse recognizes the family as the main childcare provider, implementing health plans in collaboration and partnership, searching for innovative nursing responses that allow real care, centered on the child and family. In this paradigm, and considering the current sociodemographic configuration, the participation of grandparents in childcare and the results obtained from this participation are desirable and needed to be clarified. The search in the child and pediatric health nursing literature found that grandparents have direct involvement in childcare, influence parents' decision-making, support in parenting, as well as the social support provided in situations of chronic disease of grandchildren, disclosing many different areas of childcare in which grandparents participate. The literature review that was conducted supports the importance of including grandparents in care, aiming at achieving children's well-being and health positive outcomes. However, the translation of this knowledge took place in an academic context, and the articulation in clinical settings was not totally concluded due to the levels of stress and anxiety of both parents and health professionals in the pandemic context, characterized by visitation restrictions and the risk of elderly (“grandparents”) that had the highest mortality rate. This academic journey was guided by the Theory of Transitions and pediatric nurse interventions, which promote and facilitate transitions towards a holistic child/family care. Pediatric palliative care (PPC) itself represents a transition from the curative to palliative paradigm, as well as changes in the focus of nurses' interventions and incorporation of new care philosophies. To provide PPC with quality, training in this area and awareness of professionals is necessary to recognize, intervene and refer children/families with these needs. The document, through descriptive, analytical, and reflective methodology, reflects the skills acquired and developed, and the outlined objectives and activities carried out in the various internship locations, supported by the scientific evidence and theoretical references mentioned above, which contributed to professional and personal development necessary for the completion of the Master's in Nursing.

Date of Award	26 Jan 2022
Original language	Portuguese
Awarding Institution	Universidade Católica Portuguesa
Supervisor	Sílvia Caldeira (Supervisor)