Adaptação familiar à diabetes tipo 1 na infância

: contributo de recursos parentais e familiares

Abstract

The present study aimed to explore the role of family system resources (family protective factors) and the parental subsystem (parental self-regulation and parental mutuality) in the adaptation of children's families school children with type 1 diabetes. In this work, we used the Adaptation and Confrontation Model with Disability and Stress as a reference framework, by including resources related to resistance factors and following some theoretical proposals of the Family Style Framework, when considering the role of variables in the management of the chronic condition pediatric. Assuming the adaptation of the family as a multidimensional concept, we considered family functioning and the well-being of the family as indicators.The sample consisted of 121 fathers and mothers of children aged 6 to 12 years. Data were collected through the application of self-report instruments, completed by the children's parents: Routine Evaluation of Systemic Clinical Results, Family Control Measure, Me as a Father and Family Protection Factors Inventory; a subjective measure of Family well being; a sociodemographic and clinical questionnaire.Significant relationships were observed between the main variables and the results of family adaptation. There were also indirect effects between parental self-regulation and the family's protective factors with family adaptation, through variables related to the management of the condition. We perceive the impact that the management of this disease has on the family, since the difficulties of family life were the main explanatory variable for the variance in family functioning and family well-being. Finally, it was found that factors such as the child's age, age at diagnosis and the last recorded HbA1c value moderate the effect of variables such as parental self-regulation on family well-being and parental mutuality on family functioning.

Date of Award	26 Jan 2021
Original language	Portuguese
Awarding Institution	Universidade Católica Portuguesa
Supervisor	Ana Rita Goes (Supervisor)