BACKGROUND: At the end of life, a person with advanced illness is extremely vulnerable, overwhelmed by multidimensional distress which can undermine its dignity. Identifying the factors related with its loss, could help health professionals actively intervene in order to promote and conserve dignity, and so alleviate suffering. METHOD: Analytic quantitative study with prospective character. The participants are accompanied by community setting palliative care teams. They will be asked to complete the following instruments of measure: demographic and clinical assessment form; the Patient Dignity Inventory and Edmonton Symptom Assessment System. LIMITATIONS: The study will take place in a community setting teams, with reduced sample and data collection done by different professionals, which can challenge the uniformisation of the process. We recommend further studies in different settings of palliative care and diverse pathology among participants. EXPECTED OUTCOMES: We hope to contribute to better understanding of dignity aspects and interventions, which can help health professionals in dignity conserving care. The study may be beneficial to participants, even during the course of the study, due to its approach that would allow development and engagement of care focused to deeper aspects of human integrity.
|Date of Award||29 Oct 2021|
- Universidade Católica Portuguesa
|Supervisor||Manuel Luís Capelas (Supervisor)|
- Dignity in end of life
- Palliative care
- Home-based palliative care
- Mestrado em Cuidados Paliativos