Identificação de necessidades e recursos da famílias que cuidam de pessoas em fim de vida no domicílio

Abstract

Dignity in care for a person in terminal phase is crucial to the decision of dying at home. This decision is complex and depends on a set of criteria and resources that promote the terminal assistance with the rigor of health care excellence, monitoring and availability of caregiver and family, but especially the needs and wishes of the person. When the conditions for the person in terminal phase to stay at home are ensured the providing of palliative care is essential to answer their needs. Therefore, it was studied the needs of palliative cares in population with primary health care in which exist a domiciliary presence in the end of life. The main theme addressed in this document relates to the needs and resources available in the community for families that take care of persons in terminal phase at home. In the same way, it is expected to know a specific reality, the abilities, the difficulties and the barriers felt by the families who care their relatives in end of life, reviewing the needs and existing resources available to the families and the patient at home. The results describe the family's reality who provides assistance to the person in end of life in a domiciliary context. Through the vast existent literature is demonstrated the relevance of the proposal of the project by showing “in loco” all contexts of the cares in end of life and it's proposed a practical design with a quantitative investigation which is rooted in assumptions to make known the real situation and infer about the effectiveness and efficiency of palliative domiciliary cares, in a global perspective.

Date of Award	2015
Original language	Portuguese
Awarding Institution	Universidade Católica Portuguesa
Supervisor	Helena Maria Ramos de Azevedo Maia (Supervisor) & Margarida Maria Vieira (Co-Supervisor)