Although medical treatment for chronic diseases has evolved and survival rates have increased significantly, a chronic disease child usually needs to undergo extensive medical procedures and hospitalizations. The same goes for chronic disease Cystic Fibrosis (CF), an autosomal recessive genetic disease that affects various organs of the human body. In addition to their state of health, it is important to consider the socioemotional development of children with this chronic disease since studies have concluded that there are repercussions due to the illness, the continuing treatments, and the constant need to miss classes. Currently, it is considered crucial, monitoring a team of professionals for these children to progress more effectively in the developmental tasks of school age. The goals of this study is to understand the CF disease, its impact on socio-emotional development of school age; understanding the everyday life and treatment implications in these children, and finally, understanding their school life, how they fit in and what are the educational learning and teaching strategies. We conducted a case study of an adolescent with CF, using the semistructured interview (not only to the child but also to two of the people who have the most important roles in his life, the Mother and the priority teacher responsible for his class), and a document analysis of his school file as the main instruments, which all of the data were of course analyzed, combined and discussed. To conclude, it was found that the child / adolescent with CF disease had experienced some social discomfort in school, and even some integration problems in the classroom. However, how he faces his illness and problems are without a doubt an example of courage.
Date of Award | Oct 2012 |
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Original language | Portuguese |
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Awarding Institution | - Universidade Católica Portuguesa
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Supervisor | Maria João Carapeto (Supervisor) |
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- Chronic illness
- Cystic fibrosis
- Socio-emotional development in children and adolescents
- Mestrado em Ciências da Educação
O desenvolvimento socioemocional em crianças com doença crónica: o caso da fibrose quística
Castro, J. M. L. G. (Student). Oct 2012
Student thesis: Master's Thesis