O impacto da doença oncológica da criança na família

Translated title of the thesis: The impact of the oncologic disease of children in family
  • Goreti Filipa dos Santos Marques (Student)

Student thesis: Doctoral Thesis


This study emerged due the need to deepen the understanding, ocularly, in real context, in loco, of how the families react/adapt to their new “realities” caused by the diagnosis, always unpredictable/uncomprehencible… of a serious and chronic illness - the oncological disease. This disease affects, not only the child, but also the lives of all family members, implying alterations in its structure, and the acquisition of new operating standards and way of living, in order to meet the new needs of the child and the family itself, thus keeping its growth. In this context, we aim to understand to what extent child’s oncological disease impacts the family and seek to create a tool to evaluate the chock. The results of this study aim to contribute to the development of good nursing practices, that can minimize the impact of the disease in the family. At an early stage, we developed a quantitative study, exploratory and descriptive paradigm with 45 families of children suffering from oncological diseases, from which we built and tested an evaluation instrument of the impact of oncologic disease in the family. In a second stage, we performed a correlational and predictive study, with 128 families of children with oncological diseases, in order to know the impact that disease has within them. Overall, the results show that the impact of the disease on family’s structural and economical aspects increases in families most in need of support from relatives and / or friends, with economic increased expenses and greater loss of income. The increased expenses with the disease, transport, medication and some child's diet specificities imply a significant burden on the family budget. Compounded by most parents due to the fact that they have to leave their jobs in order to care a sick child. These economic spending, interfere in the family structure and its behaviour, which appears to be reduced in satisfied families with social support. We noted that social support plays a key role in minimizing the impact of oncological diseases, the relationship that takes with the impact on family structure, economic and healthy siblings. Families see nurses as an information source holder that can help minimize the traumatic effect of the disease. In this sense, nurses should look to an interventions that increase the perception of the need for social support for families, integrating them into care and support. Nursing should aim to be directed to project the family as the focus of the care, based on all its context – family, social, economical and cultural, as it is in this context that the disease emerges.
Date of Award30 Jun 2016
Original languagePortuguese
Awarding Institution
  • Universidade Católica Portuguesa
SupervisorBeatriz Araújo (Supervisor) & Luís Sá (Co-Supervisor)


  • Disease
  • Oncological
  • Child
  • Family
  • Nursing


  • Doutoramento em Enfermagem

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