Revisão sistemática da literatura
: envolvimento do irmão saudável perante o processo de doença grave e prolongada da criança/adolescente

Translated title of the thesis: Systematic literature review: healthy siblings’ involvement towards the severe and prolonged illness process of child/teenager
  • Catarina Sofia Franco Leal (Student)

Student thesis: Master's Thesis

Abstract

Background: The healthy siblings tend to be 'forgotten' and to suffer with all the chances in their life inlcuding the loss of their friend-confidant. Methods: Systematic Literature Review in order to determine the level of involvement healthy siblings in the serious and prolonged illness process of the child/adolescent and to identify the interventions of multidisciplinary team. Results: The most referred interventions were: To provide psychosocial, Social support and To provide adequate information (promoting); Restricted visits, Insufficient information and Absence of support groups (non-promoting). The most commonly reported effects of these were: Increased feeling of comfort, Utility sensation in coping and Well-being. Conclusions: The healthy siblings are involved in part of the severe and prolonged disease process. But there is still work to be done by the health institutions and professionals, parents and the entire social environment. It is clear the need for awareness and training on this topic.
Date of Award20 Apr 2016
Original languagePortuguese
Awarding Institution
  • Universidade Católica Portuguesa
SupervisorZaida Charepe (Supervisor) & Manuel Luís Capelas (Co-Supervisor)

Keywords

  • Sibling
  • Bereaved
  • Involvement
  • Pediatric palliative care
  • Complex pediatric chronic disease

Designation

  • Mestrado em Cuidados Paliativos

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