Measuring spiritual well-being in Brazilian adolescents with chronic illness using the FACIT-Sp-12: age adaptation of the self-report version, development of the parental-report version, and validation

Willyane Andrade de Alvarenga*, Lucila Castanheira Nascimento, Claudia Benedita dos Santos, Ana Carolina Andrade Biaggi Leite, Holger Mühlan, Silke Schmidt, Monika Bullinger, Emília Campos de Carvalho, Jason Bredle, Benjamin Arnold, Robson de Castro Coelho, Margarida Vieira

*Autor correspondente para este trabalho

Resultado de pesquisarevisão de pares

2 Citações (Scopus)

Resumo

Spiritual well-being is a major issue in health care, but instruments for measuring this construct in adolescents are lacking. This study adapted the 12-item Functional Assessment of Chronic Illness Therapy-Spiritual Well-being Scale (FACIT-Sp-12) for use with Brazilian adolescents with chronic diseases and developed a parental observer-rated version, using an expert panel, back-translation, and cognitive interviews with 72 participants. The psychometric properties of both versions were verified with two- and three-factor models by testing with 212 participants. The self- and parental-reported versions showed face validity, content validity, and acceptable levels of internal consistency for the overall scale and the two-factor model. The convergent validity was satisfactory for most items in both two- and three-factor models, but there was a lack of discrimination in the three-factor model using multitrait–multimethod analysis. This study presents the first instrument to assess the spiritual well-being of adolescents from their point of view and to allow their parents to serve as evaluators. However, we recommend further psychometric testing of the self- and parental-report scales to assess spiritual well-being in adolescents with chronic diseases in Brazil.

Idioma originalEnglish
Páginas (de-até)2219-2240
Número de páginas22
RevistaJournal of Religion and Health
Volume58
Número de emissão6
DOIs
Estado da publicaçãoPublished - 1 dez 2019

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